Neuromuscular Disorders (Dystrophies, Myasthenia Gravis, Myositis)
Neuromuscular disorder (NMD) is a broad term for a range of conditions. It affects the functioning of the muscles causing progressive muscle weakness. Everyday activities become more difficult. Neuromuscular disorders can be caused by a problem:
- In the muscle (muscular dystrophy).
- The neuromuscular junction (myasthenia gravis).
- The nerve supplying the muscle (Charcot Marie Tooth disorder).
- The anterior horn cell in the spine (spinal muscular atrophy).
No matter what the cause, they all have one thing in common, progressive muscle wasting.
Below are a number of links to more information about your condition and local support.
More information on Neuromuscular conditions
- Muscular Dystrophy UK : Charity providing information, support and research for all muscle-wasting conditions
- Scottish Muscle Network
- Facioscapulohumeral Muscular Dystrophy (FSH-MD): Support Group UK
- NHS Inform: Myasthenia Gravis
- Myaware
Things I can do for myself
- Eating well
- Sleeping well
- Keeping active
- Managing stress
- Thinking and Cognition
- Continuing my employment or education
Local Support
Local community network providing practical and confidential support to young families
Website providing information and advice on who to contact for support to children, teenagers, young adults and families with older children
Local charity providing befriending services and a Community Directory of other community and voluntary groups in Orkney
Local charity supporting carers with information, emotional support and practical help.
Accepts referrals and requests for care services and points you in the right direction to help you find what you need
Local charity providing Dial a Bus, Shop Mobility and equipment advice / and sale services
Local charity providing care support services and advice for older adults (50+) living in Orkney
We hope that you have found this page useful. Please contact us if you think we have missed anything important; if you have any issues accessing the pages or simply to provide your feedback to: ork.neurology@nhs.scot